Children who are ill need their parents with them

THIS week we are debating the Employment Rights Bill which is not an area that I am an expert in but there are groups of amendments around disability and children.

- TANNI GREY-THOMPSON

I have one that is looking to support parents who have a child with a terminal condition. I was speaking to an amendment that has previously been debated in the House of Commons and had been worked on by an incredible family. Ceri and Frances Menai-Davis who are campaigning on behalf of their child Hugh who died from a rare form of cancer, rhabdomyosarcoma.

It started with what looked like a bloated stomach and resulted in the diagnosis. It is a really sad story as they always are. Hugh died just after his sixth birthday after 16 weeks on intense radiotherapy.