date for first dose of treatment that will slow progression of killer disease

Gray said: "We want young people living with DMD to benefit from new medicines such as givinostat and live longer, fuller lives.

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"I will be meeting families next week to provide reassurance that health boards are working at pace towards making givinostat available in a safe and equitable way."

NHS Greater Glasgow and Clyde said: "We are aware that the manufacturer has offered the drug for use free of charge, and we are currently going through a process to make givinostat available to eligible patients. We are also working with other regional centres throughout Scotland and health boards across the west of Scotland to develop a plan for provision of this drug."