Eireann is the happiest wee girl... we just want to care for her at home

FAMILY'S FUNDRAISING PLEA FOR TERMINALLY ILL TOT

- STUART MCFARLANE

The family of a three-year-old girl born with a extremely rare, terminal genetic condition-which affects only five other children in the world-are issuing a desperate plea to help create a safe space for her.

Little Eireann MacFarlane, from Whins of Milton, was diagnosed with a duplication of the FDXL 16 gene.

The family have been searching for answers for almost all of Eireann’s life, with the youngster nonverbal, blind and in need of 24-hour care and monitoring, including being fed through a tube.

Eireann - who sleeps in the living room of the family home with her parents-is in in dire need of a specially adapted room to meet her complex needs.

With financial options for the family limited and facing the prospect of potentially having to move away from their home and the close support of neighbours who have offered assistance, they have launched a bid to raise £10,000.

Mum Margaret Wilson told the Observer: "Eireann is very sick, she takes seizures regularly, she can’t be fed orally and is currently awaiting an operation to cut the glands in her throat.