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'As parents, we were both broken at the suffering our little boy was enduring...
Burton Mail
|November 08, 2025
MUM WRITES BOOK IN MEMORY OF SON HARRY, WHO DIED AGED THREE FROM RARE CONDITION
THE Burton mum of a toddler who died after being diagnosed with an extremely rare genetic condition has written a book in his memory.
Harry Annable was just three-years-old when he died at the Dougie Mac Children's Centre in Stoke-on-Trent after spending most of his short life in and out of hospital with kidney problems, Pulmonary Vein Stenosis and seizures.
In 2016, three years after his death, Kerry and her husband Richard learned that their little boy had been diagnosed with Turnpenny-Fry Syndrome, which is caused by a mutation on the PCGF2 gene. At the time, there were only 13 people in the world known to have had the condition.
Now, in an emotional tribute to her son, mum-of-two Kerry has penned a book called HARRY Forever loved, Forever missed, Forever three, which is due for release on November 14 on what would have been Harry's 12th birthday.
In her book, Kerry says Harry was born seven weeks early after a difficult pregnancy.
"There was a kidney problem, which Harry had two major surgeries on, and then came terrible seizures," she said.
This story is from the November 08, 2025 edition of Burton Mail.
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