Geoff tells Starmer to 'act today' on access to MND drug

The father of Leeds Rhinos legend Rob Burrow has penned an open letter urging the Prime Minister to make a "revolutionary MND drug" more readily available.

- by Charles Gray

A letter by Geoff Burrow has been published in The Times yesterday (Thursday) in which he says the lack of availability of a drug called tofersen to some MND patients is "grossly unfair".

Rob died last year after a long battle with the disease.

In his letter, Geoff says: "I know all too well the devastating impact of motor neurone disease (MND), a fatal disease that kills a third of people within a year of diagnosis, and more than half within two years.

"My son Rob inspired the nation through the courage he showed in sharing his MND story."