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If only our boys were in youth footy team..then he'd help to save them

Sunday Mail

|

April 13, 2025

Gray posed in sun after failing to respond to pleas

- BY JOHN FERGUSON

HEALTH Secretary Neil Gray is facing a backlash after failing to respond to a plea to help children with muscular dystrophy access a new life extending drug.

The Sunday Mail told last week how boys with a rare form of the muscle-wasting disease cannot get Givinostat through the NHS in Scotland despite the manufacturers giving it away for free.

There are thought to be less than 30 children suitable for the treatment which slows progress of Duchenne muscular dystrophy (DMD), which has a life expectancy of just 26 years.

Families were left devastated when Gray failed to respond to an urgent letter from their lawyer. He did though find the time to post on social media about traffic lights, youth football and even a snap of himself in sunglasses in the hot weather.

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