Family pay tribute to 'beautiful' 14-year-old
Western Mail
|December 01, 2025
A 14-YEAR-OLD from Pon-typridd who was the youngest person to be diagnosed with motor neurone disease (MND) has died. Kyle Sieniawski was diagnosed with the most common and most aggressive form of MND, amyotrophic lateral sclerosis (ALS), aged just 13.
Kyle's family shared on Facebook that their “little superhero” had died on Thursday.
They had previously said Kyle had been moved to intensive care after developing an infection which left him very poorly earlier in November.
Kyle's family wrote on the Facebook page, where they have shared Kyle's journey, on Friday to say: “We're absolutely heartbroken to announce that our little superhero has very sadly lost his battle with MND.
“Kyle fought with everything he had but in the end it all became too much for him and he very sadly passed away yesterday evening.
“There’s no way for us to describe how we're feeling. We're just completely heartbroken
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