'I was alone and frustrated and not able to get better'

Frederic Roscop contracted Lyme disease aged five but wasn't diagnosed with it until his mid-thirties. He tells of his battle to overcome chronic symptoms and find a normal life

- Frederic Roscop

As a child, I was raised in the French countryside in the Dordogne.

From around the age of five, I'd help local farmers by collecting eggs and herding cows in the fields. I was also naturally curious and adventurous and would go exploring in the bushes. I’d often end up covered in ticks and an old lady at the farm would put me in an iron bath and brush them off me. This is not the right way of removing them, which is to pull them out of the skin, as soon as possible, to prevent the transmission of disease. It should often befollowed by a course of antibiotics.

The next day, I’d be covered in bruising and red marks, which we now call a “bullmark”, or the “bullseye” rash, medically known as Erythema migrans, a hallmark symptom of Lyme disease. My mum was always horrified and took me to the doctor, who thought it was an allergic reaction to a bite and prescribed me an antihistamine. But due to a lack of awareness years ago, nobody ever mentioned Lyme disease.

Looking back, I suffered years of mild symptoms. I had a delayed puberty because my body was not functioning properly; weight gain due to factors known to be caused by Lyme disease, such as gastrointestinal issues and hormonal imbalances; and I craved sugar because my body was stressed.

As much as I was exhausted, I was also hyper - Lyme disease can cause symptoms that mimic or contribute to ADHD - and I was also hypersensitive. I couldn’t switch off. By the age of eight, I was already seeing a psychotherapist who recommended more exercise to exhaust me.

It was painful because I knew I was struggling, but I didn’t know why. I was failing at school - my body was not functioning enough for me to study properly. I was lacking in confidence.