'Scared of dying', but funding gives hope to sickle cell sufferer Solome

A woman with a rare blood disorder said she lives in fear of dying, with constant worries about organ failure or having a stroke.

- by James Connolly

Solome Mealin, from Leeds, suffers from sickle cell disease - a debilitating condition that can cause pain, infections, and reduce life expectancy.

Diagnosed at just four years of age, she said the disorder has affected every aspect of her life and has left her feeling like she has to work harder than many of her peers. But thanks to a £9m Government investment in new technology for the NHS, she's set to benefit from access to specialist treatment.

Speaking on World Sickle Awareness Day (June 19), Solome said: "The disease has affected me in every way: mentally, physically, socially, financially.

"The constant pain is the main destroyer. Everything I do, I have to work harder and always feel behind my peers. Many dreams have been shattered - and yet I had so many."