'My super-rare daughter is falling through NHS cracks'

Schoolgirl desperately needs new wheelchair for rare condition

- Hayley Parker

BATTLE: Summer is the only child in the country thought to have the HERC1 condition.

A SCHOOLGIRL who is one of only around 10 children in the world with the same genetic disorder has 'fallen into a gap' in NHS provision.

Little Summer Calvin, nine, has been diagnosed with HERC1, which means she is abnormally tall for her age, but cannot walk or speak.

The nine-year-old's family asked NHS wheelchair services for a new chair in 2022 after she outgrew her previous one. She desperately needs a well-fitted wheelchair to prevent spinal damage.

But her mum Larissa Evans said the NHS deemed the cost of meeting her needs too high and only offered her a less suitable chair.