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Please help ease the agony of 'butterfly skin' kids

Irish Daily Star

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August 25, 2025

Claudia urges public to boost search for cure 'so no one else suffers as she did'

- BY KEITH FALKINER

A 21-YEAR-OLD woman with a rare skin condition has said she never wants to see another child battle the same loneliness and isolation she did.

Claudia Scanlon, from Terenure in Dublin, has a severe form of epidermolysis bullosa (EB).

The genetic illness, which is known as butterfly skin, causes the skin to blister at the slightest touch.

Now the makeup artist is urging the public to help a charity's vital work ensuring that other children battling it have normal childhoods.

"I don't want any child living with EB to experience the loneliness and isolation I did," said Claudia, who previously appeared on The Late Late Show alongside rugby star Johnny Sexton, to raise awareness about the condition.

"Secondary school was a particularly tough time because, like most teenagers, all I wanted to do was fit in.

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