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People with MND dying waiting foradaptations’, says charity
The Guardian
|December 24, 2025
People with motor neurone disease (MND) are dying while waiting for grants to make their homes fit to live in owing to a huge backlogs in applications, campaigners have said.
The MND Association has found it takes an average of 375 days for people in England to get essential home adaptations through the government's disabled facilities grant (DFG) because of growing delays in the system.
But a third of people with MND die within a year of diagnosis, and about half die within two years, meaning they are spending their last months fighting for support, with many dying in unsafe and unsuitable homes.
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