'There was even the worry that we wouldn't be together'

FAMILIES OF BOYS WITH CYSTIC FIBROSIS WHO CAN'T TAKE CHRISTMAS FOR GRANTED

- By SOFIE JACKSON

THE families of East Yorkshire boys living with cystic fibrosis have spoken about their fears around the Christmas season and their hopes of a special day at home - not in hospital.

The genetic disease affects the lungs and can make ordinary winter bugs extremely dangerous.

Jakub, four, from Hull, was diagnosed with cystic fibrosis as a baby, at only four days old. Jakub's mum, Julia, said: "One year, Jakub picked up an infection and had to be admitted just before Christmas.

"The doctors reassured us he would be home in time, but it was still such a tough moment for us as a family. The hardest part was feeling like we were missing out - decorating the house, preparing food, and planning to see family.