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Ehlers-Danlos syndrome sufferer's fight for disability rights
Cape Argus
|February 10, 2026
A WHEELCHAIR-bound and mostly bedridden Athlone woman has spoken out about the daily battles she faces living with a rare, incurable genetic condition made worse by what she describes as a lack of disability-friendly infrastructure in her building.
GAFSA Garson
(Phiri Cawe)
Gafsa Garson suffers from Ehlers-Danlos syndrome, a connective tissue disorder.
"I was diagnosed years ago. I could walk at first, but my condition gradually deteriorated. It affects all systems the nervous system, the skeletal system, everything."
Garson, who lives with her daughter, a student, struggles with even the most basic daily activities.
However, she said her biggest challenge is what she describes as "blatant negligence in enforcing disability laws and national building regulations" at the sectional title complex where she lives.
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