Couple step out to shine light on tot's rare condition

A MUM and dad from Wales who stepped up to take on a 100-mile challenge to raise awareness of their son's little-known condition and mark the anniversary of his life-changing surgery, have raised over £4,300 for Birmingham Children’s Hospital Charity.

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Rosie and Gareth Collins, from Porthcawl in South Wales, pulled on their trainers after pledging to walk or run 100 miles throughout April, which marked a year since their two-year-old son, Finn, underwent surgery to correct a condition called Sagittal Craniosynostosis, which affects the development of the skull.

Finn was just one-month-old when parents’ intuition told Rosie and Gareth that something wasn't quite right. They took Finn to see their health visitor who referred them to their local children’s hospital unit and eventually, he received an appointment and underwent a CT scan. It confirmed Finn's diagnosis and doctors explained that it meant the bones in his skull had fused prematurely, affecting the shape of his head and leaving little room for his brain to grow and develop.