Jenna Lowe's legacy begins new chapter

THE Jenna Lowe Trust has officially handed over its work to the Pulmonary Hypertension Association of SA (PHA SA), marking a new chapter in advocacy and care for patients with pulmonary hypertension (PH).

- ERIN CARELSE

"The time has now come for the work of the organisation to evolve under the leadership of PHA SA, which is a natural home for the Trust’s programmes,’ said Gabi Lowe, Jenna's mother and co-founder of the Trust.

Looking back, Lowe believes her daughter would be proud of what the Trust has achieved.

“I know with all my heart that Jen would be proud of what we have achieved so far and that she would not have stopped advocating for better access to care for all patients. She would have continued to lobby for increased organ donation awareness and rates,” she said.

Jenna's story began in 2014, when she was just 17.

Critically ill with PH, a rare and debilitating lung disease that is often misdiagnosed, she launched the #GetMeTo21 campaign. Through her campaign, Jenna captured hearts and minds in South Africa and abroad, raising awareness for organ donation and PH.