Parents' plea as son 'cruelly' denied drug to enhance his life

SEVEN-YEAR-OLD JACKSON SUFFERS FROM A 'RARE GENETIC DISORDER'

- By THOMAS COOPER

THE desperate parents of a disabled child are pleading with the NHS to allow their son access to a new drug.

Jessica and Ashley Campion, of Uttoxeter, say the new medication could 'massively' improve their seven-year-old son's quality of life.

Jackson Campion suffers with Duchenne's muscular dystrophy - an extremely-rare genetic disorder which causes the muscles to deteriorate.

Affected children often require a wheelchair by the age of 12, and have a life expectancy of just 30 years.

His parents' worries began when they noticed Jackson often fell over and sometimes had difficulty standing.

Jessica and Ashley soon took him to be seen at Birmingham's Heartlands Hospital in 2021.

Jessica said: "They kept insisting there was nothing wrong with him and then they finally did a test and it came back with this. We'd never heard of it, like I'm sure many others haven't either.