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Indian Academy of Neurology platforms the voice of the ALS community
Health Vision
|Dec 2012
New Delhi: The ALS Care & Support Foundation had the proud privilege to be the voice of the Amyotrophic Lateral Sclerosis (ALS) community in India at the 18th Asian Oceanian Congress of Neurology (AOCN) and 29th Annual conference of the Indian Academy of Neurology (IANCON) held recently.
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The platform was ‘Nerurons ki Awaaz’, a public awareness and advocacy initiative of IANCON. The session on ALS brought together doctors, researchers academicians and over 70 plus persons from the ALS community, both people living with ALS (PALS) and their caregivers (CALS).
Expressing her gratitude to IANCON for the opportunity to share the experiences of the ALS community at this important forum, Satvinder Kaur, co-founder of the ALS Care & Support Foundation said, “This is an unprecedent development. IANCON has bridged the gap between doctors and patients and provided a strong foundation for a patient-centric approach for treatment of ALS and other neurological disorders.”
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