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Mum speaks out on rare epilepsy on 10th anniversary of daughter's death

Yorkshire Evening Post

|

May 26, 2025

A Leeds mum is raising awareness about a rare form of epilepsy to mark the 10th anniversary of her daughter's tragic death aged just two-and-a-half.

- by Charles Gray

Mum speaks out on rare epilepsy on 10th anniversary of daughter's death

In memory of her daughter Edie, Cheryl Murphy, 40, is running Epilepsy Action's Bradford 10k on Sunday (June 1) with friends as part of 'Edie's flyers" to raise awareness of Hemiplegia Epilepsy syndrome (HHE).

Cheryl has run Bradford 10K several times before as well as numerous marathons and other races, all of which are done in Edie's memory.

Cheryl, from Pudsey, said: "Edie was everything a toddler should be - full of fun, cheekiness, happiness and love.

"She hadn't been diagnosed with epilepsy when she died, but she had had a seizure that was thought to be a febrile convulsion.

"When she had her second seizure, we thought this was another febrile convulsion. Sadly, we now know this wasn't the case."

Edie was admitted to hospital and spent six days on life support following this severe seizure, and sadly died on October 16 2015.

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