Merrivale family appeals for help for daughter with rare genetic condition

A MERRIVALE, KwaZulu-Natal family is appealing to the public to help fund the ongoing medical care of their 13-year-old daughter, Tyler Jade Moran, who has an extremely rare genetic condition.

- SIPHESIHLE BUTHELEZI

“Our daughter Tyler is the absolute light of our lives,’ said Hayley Moran.

“She was born with a rare disorder called DSD, Disorder of Sexual Development, which affected her anatomy. Her surgeon and endocrinologist even took her case overseas to get research”

Tyler has undergone 18 surgeries to date, including a major 12-hour operation that required over 1 000 stitches.

“Two days later, she was made to get up and walk,’ Moran said. “She has endured countless scans, MRIs, and procedures, all with remarkable strength and grace”

In July last year, further genetic testing revealed that Tyler has an unprecedented combination of chromosomes.

“She is truly one of a kind; she has three sets of chromosomes running through her, Moran explained.