Ann-Louise just loves music and gets to play Ed Sheeran's guitar at the hospice

As Ann-Louise Owens performed on stage in her hospice’s Disney showcase, she took on an amazing transformation.

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The teenager, who has a rare life-limiting condition which causes up to 200 absent seizures a day, was beaming with happiness and confidence as she sang Let It Go from Frozen.

Her mum Mary, 56, watched with pride as her daughter's angelic voice wowed the audience. She felt emotional as it was a real triumph for Ann-Louise.

Ann-Louise, who yesterday celebrated her 15th birthday, was diagnosed with rare Chromosome 22Q duplication genetic disorder at the age of three. The condition causes severe uncontrolled epilepsy but music is a way for her to connect and have fun.

She regularly plays on a guitar gifted by East Anglia’s Children's Hospices’ ambassador, Ed Sheeran, and his hit song Castle on the Hill is her favourite.

Two weeks ago we launched our Mirror Christmas appeal in aid of Lifelites to “Unwrap the Magic of Christmas” for thousands of children and young people like Ann-Louise.

The campaign aims to raise vital funds for them to experience the wonder of life-changing technology.

Lifelites currently reach 15,000 children with life-limiting conditions.

The charity provides seriously ill and disabled children the chance to play, create and communicate, using the power of assistive and sensory technology.

This includes the Soundbeam, a touch-free musical device that uses sensor technology to translate movement into sound, Magic Carpet, which projects moving images on to the floor (or any suitable surface) to enable children to interact and control their environment, the Eyegaze, which tracks eye movements and allows children to control a computer, and more.

However, there are still 85,000 children without access to Lifelites.