‘GUYS! REMEMBER: ABOVE THE NECK! OK, GO.’
We are practicing giving compliments at the PEERS Dating Boot Camp, a program for teens and adults with special needs who hope to find love. The participants, many with autism, are mostly in their mid to late 20s, but seem years younger. They come alone or with parents, caretakers, sometimes a sibling. Almost all live with their families. There’s lots of unfortunate facial hair, T-shirts from obscure bands (Radioactive Chicken Heads), noise-canceling headphones for the hearing-sensitive, plushy key rings hanging off backpacks.
Reading social cues is difficult for those on the spectrum, so everyone here wants to know the rules. And when it comes to dating, there are a lot of rules. Dating coaches, either doctoral students or administrators in the neuroscience program at the University of California, Los Angeles are trying to explain them.
A slight man in plaid flannel and khakis that seemed to be ironed on, frowns as he scans a female dating coach, looking for an in. His face brightens when he notices a tattoo on her ankle.
“Hey! I see you have a lambda. You like biophysics? Me too!”
“Neck up, I said. But OK, great!” the male coach leading the exercise says. “That was very nice; you established common interest.” The young man beams. The male coach turns to a baby-faced man in a neat button-down shirt and asks him to try complimenting the female coach. She smiles encouragingly; he breaks into a flop sweat. Finally, words spill out: “I. Um. I … like the way your earrings sparkle against your pale white skin.”
“Poetic!” the male coach says. “But we want to stay away from skin color, race, religion, and ethnicity at first, you know.” The man, who is brown-skinned, nods and takes notes. He was eager to explain himself, though. “If she is very pale, that means she’s not out in the sun all day, working in the fields, like she’s royalty.”
Not helping, dude. Still, that would win my heart.
ADULTING IS HARD. Adulting as a person with autism spectrum disorder is harder.
Autism is a complex neurological condition that includes impairments in social interaction, language, and communication skills, combined with rigid, repetitive behaviors. (See the story on detecting autism, page 90.) The range of disability (and ability) is huge, which is why it’s called a “spectrum” disorder, and the number of those affected is growing. In 2018 the U.S. Centers for Disease Control and Prevention published a study that found the prevalence was one in 59 eight-year-olds, a 15 percent increase over two years. Why? That’s a subject of heated debate. But one thing is certain: There’s a rapidly growing population of adults with autism. In the United States, more than 700,000 will reach adulthood by 2030, according to Paul Shattuck, an associate professor of public health at Drexel University. Services for autistic adults fall off the cliff after they reach age 21. What will all these people do in their daily lives?
Data about employment vary significantly, but more than eight out of 10 autistic adults are thought to be unemployed or underemployed. Studies also show that the same number desire a romantic partner, but only a third to a half have one and fewer ever marry. If Freud was right— that love and work are the foundation of our humanity—we need to do better.
These issues are very personal to me. My autistic son, Gus, just turned 18. He’s the kindest person you’ll ever meet, with a confounding combination of strengths and weaknesses that makes me unable to guess if he’ll ever live on his own. Why can he play the piano beautifully but can’t cut his own food? Why does he love social media but can’t help friending absolutely everyone, so his circle includes “Sex Worker Aboud” and enough sketchy “friends” to qualify for the FBI’s watchlist? For that matter, why can he navigate New York City so easily but can’t be trusted with money because he gives it away to anyone who asks? Recently I received a fraud notice on my credit card. It appeared the thief’s purchases consisted of thousands of dollars of donations to Democratic causes. Yes, it was an inside job. When Gus was busted, he just said sadly, “But … I thought you wanted to ditch Mitch.”
I think a great deal about what it will take to make my son independent. Some days, it’s all I think about. I’m not alone. If there are more than an estimated four million autistic people in the U.S., there are surely a great deal more than four million neurotypical people who love them.
As Gus ages into adulthood, the list of his challenges that worry me grows longer. But the two questions that keep me up at night are: Will he find love, and will he find work that means something to him and allows him to at least partially support himself? I set out to see what I could learn.
ABOUT A YEAR AGO a note was passed on to me. It was from a teacher at Gus’s school. I had just published To Siri With Love, a book about raising an “average” kid on the spectrum, and I guess I did a lot of fretting. “I don’t know wtf Judith Newman is talking about,” the teacher wrote. “Gus will get a real job! He isn’t going to need anyone’s charity.”
That’s the best note I’ve gotten, ever.
It’s true that more and more companies are recognizing the unique, and sometimes extraordinary, talents of autistic people. Some have set up special recruiting divisions. Microsoft and HP hold multiday hiring events to recruit autistic engineers and data scientists; JPMorgan Chase and Deutsche Bank also have seen the tremendous advantages of hiring those whose social skills may be iffy, or even nonexistent, but who have technical gifts. This is wonderful, but such whizzes represent only a small subset.
What about the regular (autistic) Joe, or Gus?
A lot of mom-and-pop concerns are filling this niche, generally started by a business-minded parent with an autistic child. On any given day I hear about new ones. Good Reasons in North Salem, New York, is a dog treat company that helps autistic people realize their “pawtential.” (Note to owners: Just because you’re helping people like my kid doesn’t excuse this pun.) Coletta Collections in Washington, D.C., sells costume jewelry and hand-dyed scarves, featuring its artisans in profiles on its website. Two bookstores in New Jersey called Words, owned by a couple whose son is on the spectrum, employ mostly autistic help. Gus has interned at Luv Michael, which makes an organic, glutenfree, nut-free granola named after the autistic son of the founders, Lisa Liberatore and Dimitri Kessaris. Gus, who has the autistic person’s very limited palate, doesn’t eat granola. But his paycheck? He ate it up.
Luv Michael and many similar businesses are nonprofits. I wondered whether there were businesses that predominantly hired people on the spectrum and yet were still trying to make a buck.
Continue reading your story on the app
Continue reading your story in the magazine
A YEAR ON THE EDGE
A DEADLY VIRUS. LIVES IN LOCKDOWN. PASSIONATE CALLS FOR JUSTICE. THE IMAGES OF 2020 CAPTURED THE HUMANITY OF A TURBULENT TIME.
Celebrating in the Pandemic
WE’RE MISSING HOLIDAY CLOSENESS JUST WHEN WE NEED IT MOST. BUT EVEN GRIM, UNCERTAIN TIMES HOLD SPARKS OF LOVE AND LIGHT.
PUTTING ARTIFICIAL LIGHT IN A NATURAL ENVIRONMENT ADDS AN ILLUMINATING KIND OF AWE.
ERIKA CUÉLLAR SOTO
She helps Indigenous people protect the ‘magic’ of their lands. When Bolivian conservation biologist Erika Cuéllar Soto saw the sunrise over the Gran Chaco for the first time, in 1997, she knew she was somewhere special.
The Celebrity At The Zoo
Almost everybody loves Pandas. After a year documenting a newborn cub, a photographer remembers when she did too.
The Cost Of Harming Nature
The pandemic proves it: By damaging the planet, we have sapped nature’s power to protect us from diseases.
Meet The Machines In Our Future
Humankind has a complicated relationship with robots. On one hand, we appreciate how they can do dangerous, repetitive work so we don’t have to.
When Virtual Life Turns Into Quarantine
MY GENERATION THRIVES IN THE VIRTUAL WORLD. BUT WHEN COVID-19 CUT US OFF FROM THE PHYSICAL WORLD, SOMETHING WAS LOST
What We Don't Learn From History
IT’S APPARENTLY humankind’s fate never to stop writing the history of pandemics. No matter how often they occur—and they do occur with great frequency—we collectively refuse to think about them until circumstances demand it.
WATER EVERYWHERE AND NOWHERE
A 2,400-MILE TREK ACROSS INDIA REVEALS THE MYSTICAL LURE OF ITS SACRED RIVERS—ANDA CRISIS THAT THREATENS A WAY OF LIFE.
How Eating Organic Benefits People & Planet
Removing GMOs and pesticides from your diet can take a huge toxic buden from your body- and the planet
The Internet Doesn't Have To Be Awful
The civic habits necessary for a functioning republic have been killed off by an internet kleptocracy that profits from disinformation, polarization, and rage. Here’s how to fix that.
In the woods of rural Rankin County lies the history of Mississippi’s first medical college.
GANGSTERS TARGETED GAGA'S DOG'S
Police suspect shooting & heist was initiation ritual
The Ramirez Family Rolling Memorial
GUARDS/CENTERS: TOP AVAILABLE FREE AGENTS
Brandon Scherff, Washington 6-5 • 315 pounds • 29 years old The fifth pick of the 2015 draft, Scherff certainly lived up to the hype. He’s got everything teams want in a guard — size, grit, great technique, power and the mobility to get to the second level. His massive hands (11 inches) are a huge asset for a guard to grab and clutch. He made the Pro Bowl four of his first five NFL seasons. $$$$$
GUARDS/CENTERS TOP AVAILABLE FREE AGENTS
GUARDS/CENTERS TOP AVAILABLE FREE AGENTS
KELLY BLOWS UP!
Stress-eating is taking a heavy toll - INSIDERS
Meet the musicians who refused to let the music die
CLARKSON TEETERING ON THE EDGE!
Tells lawyers: Do what it takes to get Brandon out of my life!