The socio-economic impact of rare diseases which regional medical experts claim, affect 2.2 million children of the 2.97 million afflicted in the Middle East, is resolvable by way of a multi-sectoral collaborative approach.
Through a multi-sectoral collaborative approach, it is hoped that a well-organised and coordinated, national to regional constantly updated rare diseases database is achieved, towards the realisation of implementable country to region-wide policies. This calls for the active participation of and cooperation among policymakers, doctors and nurses, educators, non-government organisations, support groups and the pharmaceutical industry. Awareness campaigns, as well as continuous research and development for therapeutics and advanced evidence-based scientific remedies, are seen as solutions.
Necessary are empowered nurses, patients and their families.
The suggestion came from top rare diseases consultants, policymakers and academe officials from the UAE, Saudi Arabia, Oman and Kuwait who guested at the recent online “Rare Diseases in the Middle East: Improving Diagnosis and Treatment” hosted by The Economist Events.
Continue reading your story on the app
Continue reading your story in the newspaper
Take jabs or risk infection, UAE warns unvaccinated
Over 87% of UAE residents vaccinated; country sees 2,127 new cases, 4 deaths; 3 cases of ‘Black Fungus’ reported in Oman; India reports the lowest number of cases since March 29; Pakistanis traveling to Saudi can get AstraZeneca vaccine.
Old flames burn brighter as J.Lo and Ben Affleck together again
Paparazzi photos printed in the New York Post showed the two actors kissing while enjoying a meal with members of Jennifer Lopez’s family
India, NZ name squads for WTC final; Sachin calls for WC in Tests every four years
Tendulkar, the most prolific run-scorer in both Tests and 50-over cricket, urged the ICC to schedule future Test championships in a dedicated two-three-month window like the World Cups
Govt panel confirms first death after vaccination
A 68-year-old man, fully vaccinated, died on March 31 and it has been labelled as ‘vaccine product related reaction’; Delhi defies social distancing, doctors say brace for virus ‘explosion’
Fungal infection detected in some virus patients in Oman
Oman says 3 virus patients have become infected with mucormycosis, a life-threatening condition commonly known as ‘black fungus,’ which has spread quickly among virus patients in India
Emirates actively contributes to Dubai's economic success: VP
Sheikh Mohammed says that he is confident that the Group would continue its role as a world leading organisation in shaping the future of global aviation, while also furthering the UAE’s vision and aspirations
Hungary Face Portugal Test As Ronaldo Launches Bid For Goals Record
Ronaldo needs six more goals to become the all-time leading scorer for a national team. If Portugal go far at tournament, he could indeed break Iran striker Daei’s record of 109 goals
UK Delays Lockdown Easing By A Month
LONDON: Prime Minister Boris Johnson delayed his plans to lit COVID-19 lockdown restrictions by a month on Monday, warning that the more infectious Delta variant meant if he did nothing thousands more people might die.
Supermodel Kate Moss Is Reportedly Training To Become A Tattoo Artist
Kate Moss has revealed that she has been taking lessons from her tatoo artist friend Daniel Casone, as she wants to go to Glastonbury to ink people
UAE Graded Third Globally For Digital Government Services
The level of satisfaction of digital government services in UAE is high, with a net satisfaction score of 73%, in comparison to the averages of developed countries 64% and developing countries 58%