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'Butterfly skin' hasn't held me back.. things just take longer to plan
Daily Record
|November 25, 2025
Lisa tells how blisters put parents under suspicion
A MUM has told how her rare “butterfly skin" wounds were so misunderstood as a child her parents were suspected of abusing her.
Brave Lisa Irvine, from East Kilbride, says she learned to live with epidermolysis bullosa (EB) - a cruel disorder that can cause the skin to blister at the slightest touch.
The 44-year-old said: “I don't like to say EB has held me back. Things just take that bit longer to plan but there is always a way around things.”
Before she was diagnosed, her family were thrown into a devastating child protection dispute that threatened Lisa's removal from the family home when her blisters were mistaken for cigarette burns.
Now Lisa, who has a daughter who also suffers from EB, has become an ambassador for butterfly skin charity Debra UK, which has helped her throughout her life.
Cette histoire est tirée de l'édition November 25, 2025 de Daily Record.
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