Public rally to help boy with rare condition
The Herald|May 26, 2022
MUM OVERWHELMED AT GENEROSITY FOR SON ! WITH LEUKODYSTROPHY
AMBER EDWARDS
Public rally to help boy with rare condition

A PLYMOUTH mum has been overwhelmed by support to get her little boy to Amsterdam to see a specialist doctor. Three-year-old Dude was diagnosed with a rare degenerative disease last month.

After many tests and scans, Dude was found to have 4H Leukodystrophy POLR3B, a rare degenerative disease that affects the nervous system and means he will slowly lose the ability to walk, talk, hear, eat or do anything for himself.

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