“We are trying to address rare disorders”
Express Healthcare|January 2020
Recently, Bengaluru-based Vikram Hospital opened a state-of-the-art ‘Center of Excellence’ for Huntington Disease. In the coming time, the hospital is also planning to open up new exclusive clinics for various other rare disorders to fill the void of care in the health sector. Dr Prashanth LK, Consultant Movement Disorders Specialist, Vikram Hospital, Bengaluru gives more details on the hospital’s plan in an interaction with Usha Sharma
Usha Sharma
“We are trying to address rare disorders”

Tell us how big is the rare disease market in India? And in the last 10 years, how many rare diseases have been found in India?

According to definition, a rare movement disorder is one whose prevalence is less than 50 per 100,000 population. They are ‘rare’ only by terminology and account for more than 7000 medical disorders. Hence overall, they constitute about 6-8 per cent of population. Keeping this in picture, India constitutes 1/5th of this global scenario. Many of these disorders require dedicated healthcare services and some of them have dramatic medical care. Because of rarity of these disorders, most of these are usually misdiagnosed and do not get proper interventions.

Recently, Vikram Hospital has opened a state-of-the-art center of excellence for Huntington’s disease, tell us about the objective behind making an investment?

Huntington’s disease comes under the category of rare movement disorders. More prevalent disorders like Parkinson’s Disease, Alzheimer’s, dementia, diabetes are well recognised leading to general population awareness, special clinics and government policies follow with them. This is lacking in rare movement disorders. We are trying to address this void in healthcare by creating niche clinics for specialised disorders which require team efforts for management. These clinics will create awareness in public, support to the families and finally getting required support from government and insurance companies for supporting them.

Huntington disease (HD) is one amongst the rare disease portfolio, how chronic it is?

This story is from the January 2020 edition of Express Healthcare.

Start your 7-day Magzter GOLD free trial to access thousands of curated premium stories, and 8,500+ magazines and newspapers.

This story is from the January 2020 edition of Express Healthcare.

Start your 7-day Magzter GOLD free trial to access thousands of curated premium stories, and 8,500+ magazines and newspapers.

MORE STORIES FROM EXPRESS HEALTHCAREView All
Healthcare Communication In India
Express Healthcare

Healthcare Communication In India

Dr Alexander Thomas, President, Association of Healthcare Providers - India (AHPI) and Divya Alexander, Research Consultant, in a first of a series provide detailed insights on healthcare communication that explores its different aspects in an Indian context

time-read
6 mins  |
March 2020
The growth story
Express Healthcare

The growth story

Himanshu Baid, Managing Director, Poly Medicure elucidates on how Poly Medicure has served the medical fraternity for over 22 years and owns more than 215 patents and continues to file new patents for new technologies and devices they are developing with the help of its R&D team

time-read
2 mins  |
March 2020
Main objective of Indian Joint Registry is to help patient safety, bring stability to the market
Express Healthcare

Main objective of Indian Joint Registry is to help patient safety, bring stability to the market

In the wake of several patients suffering from the impact of faulty hip implants, it is vital that India has a national joint registry to track such patients and avoid future episodes. Richard Armstrong, Head, Health Registries, Northgate Public Services tells Viveka Roychowdhury about the response to the Indian Joint Registry

time-read
4 mins  |
March 2020
Express Healthcare

UNDERSTANDING THE RELEVANCE OF HEALTHCARE RESEARCH

India as a nation has followed the west for decades when it comes to research-based treatments. The sun is fast setting on this methodology and there is a massive need to invest in healthcare research in the country

time-read
8 mins  |
March 2020
I have witnessed the steady technical advances in ultrasound
Express Healthcare

I have witnessed the steady technical advances in ultrasound

Dr BS Rama Murthy, Consultant Radiologist, Srinivasa Ultrasound Scanning Centre and Chief Patron, Medical Ultrasound Society of Karnataka, Coordinator – Fetal Foundation of India, talks about the evolution of ultrasound and how foetal imaging has improved over the years, in an interaction with Express Healthcare

time-read
4 mins  |
March 2020
Radiology has a bright future and has been at the forefront of healthcare
Express Healthcare

Radiology has a bright future and has been at the forefront of healthcare

Radiology has a major role to play when it comes to healthcare. Dr Piyush Saxena, Consultant Radiologist and Chief of MR imaging, Vishesh Hospital and Diagnostics, Indore, MP in an exclusive conversation with Express Healthcare disscuses the impact of radiology on healthcare and how newer innovations from GE Healthcare has helped improve healthcare delivery as well as patient comfort

time-read
4 mins  |
March 2020
The Pill For India's Ailing Medical Eductaion System
Express Healthcare

The Pill For India's Ailing Medical Eductaion System

Medical education in India is mired with a host of controversies and is trudging along a rough path.

time-read
6 mins  |
February 2020
RED INITIATIVE - Canon Medical / Erbis Engineering conducts CME programmes on CTO-PCIs in Chennai
Express Healthcare

RED INITIATIVE - Canon Medical / Erbis Engineering conducts CME programmes on CTO-PCIs in Chennai

Invites renowned Japanese cardiac interventionist, Dr Kinzo Ueda to India to share his experiences and insights with cardiologists at Apollo Hospitals and Sri Ramachandra Institute of Higher Education and Research

time-read
8 mins  |
February 2020
Roche Diagnostics partners with SRL Dr Avinash Phadke Lab
Express Healthcare

Roche Diagnostics partners with SRL Dr Avinash Phadke Lab

Roche’s first partner for cobas pro solution is SRL Dr Avinash Phadke Lab in Mumbai. The solution promises to offer greater automation, flexibility and simplified workflow to support better clinical outcomes for patients

time-read
5 mins  |
February 2020
Pharmacogenomics- Essential to end the era of trial and error medicine
Express Healthcare

Pharmacogenomics- Essential to end the era of trial and error medicine

Chandni Luthra, Co-Founder, FutureMed elucidates on the impact that trial and error has had on patients earlier, but in today's age adverse drug reactions is considered to be the fourth leading cause of death worldwide and has almost doubled in India in the last three years

time-read
3 mins  |
February 2020